On average, black Americans are sicker and die earlier than white Americans. Uncertain Suffering provides a richly nuanced examination of what this fact means for health care in the United States through the lens of sickle cell anemia, a disease that primarily affects blacks. In a wide ranging analysis that moves from individual patient cases to the compassionate yet distanced professionalism of health care specialists to the level of national policy, Carolyn Moxley Rouse uncovers the cultural assumptions that shape the quality and delivery of care for sickle cell patients. She reveals a clinical world fraught with uncertainties over how to treat black patients given resource limitations and ambivalence. Her book is a compelling look at the ways in which the politics of racism, attitudes toward pain and suffering, and the reliance on charity for healthcare services for the underclass can create disparities in the U.S. Instead of burdening hospitals and clinics with the task of ameliorating these disparities, Rouse argues that resources should be redirected to community-based health programs that reduce daily forms of physical and mental suffering.
Cover Title Copyright Contents Preface Acknowledgments Introduction PART I: The Questions 1. Race and Uncertainty 2. Sickle Cell Disease in the Clinic 3. Health Care Access and Medical Uncertainty 4. The Affective Dimensions of Pain 5. Uncertain Efficacy 6. Uncertain Suffering PART II: Reforming the System 7. Finding a Way Out of Doxa: Anthropology of the Imagination 8. Adolescent Transitioning: Acculturating Patientsto the Culture of Medicine 9. Thought Experiment: What Does It Mean to Save a Life? 10. Rethinking Suffering: Community-Based Health Care, Alternative Medicine, and Faith Conclusion Notes References Index A B C D E F G H I J K L M N O P Q R S T U V W Y.
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Electronic reproduction. Ann Arbor, Michigan : ProQuest Ebook Central, 2021. Available via World Wide Web. Access may be limited to ProQuest Ebook Central affiliated libraries.