Franklin

People's Science : Bodies and Rights on the Stem Cell Frontier / Ruha Benjamin.

Author/Creator:
Benjamin, Ruha, author., Author,
Publication:
Stanford, CA : Stanford University Press, [2020]
Format/Description:
Book
1 online resource (272 pages)
Contained In:
De Gruyter University Press Library.
Status/Location:
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Subjects:
Embryonic stem cells -- Research -- Government policy -- California.
Embryonic stem cells -- Research -- Social aspects -- California.
Medical policy -- Social aspects -- California -- Electronic books.
Medical policy -- Social aspects -- California.
Stem cells -- Research -- Government policy -- California.
Stem cells -- Research -- Social aspects -- California.
Language:
In English.
System Details:
Mode of access: Internet via World Wide Web.
text file PDF
Summary:
Stem cell research has sparked controversy and heated debate since the first human stem cell line was derived in 1998. Too frequently these debates devolve to simple judgments-good or bad, life-saving medicine or bioethical nightmare, symbol of human ingenuity or our fall from grace-ignoring the people affected. With this book, Ruha Benjamin moves the terms of debate to focus on the shifting relationship between science and society, on the people who benefit-or don't-from regenerative medicine and what this says about our democratic commitments to an equitable society. People's Science uncovers the tension between scientific innovation and social equality, taking the reader inside California's 2004 stem cell initiative, the first of many state referenda on scientific research, to consider the lives it has affected. Benjamin reveals the promise and peril of public participation in science, illuminating issues of race, disability, gender, and socio-economic class that serve to define certain groups as more or less deserving in their political aims and biomedical hopes. Under the shadow of the free market and in a nation still at odds with universal healthcare, the socially marginalized are often eagerly embraced as test-subjects, yet often are unable to afford new medicines and treatment regimes as patients. Ultimately, Ruha Benjamin argues that without more deliberate consideration about how scientific initiatives can and should reflect a wider array of social concerns, stem cell research- from African Americans' struggle with sickle cell treatment to the recruitment of women as tissue donors-still risks excluding many. Even as regenerative medicine is described as a participatory science for the people, Benjamin asks us to consider if "the people" ultimately reflects our democratic ideals.
Contents:
Frontmatter
Contents
Preface
Acronyms
Introduction: To the moon
Chapter one. Locating biological citizenship
Chapter two. Whose body politic?
Chapter three. Eggs for sale
Chapter four. Race for cures
Chapter five. Depathologizing distrust
Chapter six. Toward real utopias
Acknowledgments
Notes
Index
Notes:
Description based on online resource; title from PDF title page (publisher's Web site, viewed 15. Sep 2020)
Contributor:
De Gruyter.
ISBN:
9780804786737
OCLC:
1198929945
Publisher Number:
10.1515/9780804786737 doi
Access Restriction:
Restricted for use by site license.